Now for the more important sobering news. Many of you know that we had Elliana's Dr. Apt. today for her head. Our pediatrician referred us to a specialist at Children's Hospital in St. Louis to get her a little helmet because her head was a little misshapen supposedly due to delivery or her being breech in the womb.
Much to our surprise she was diagnosed with a condition known as Sagittal Synostosis, meaning the bone plates of her skull had fused together prematurely, sometime in the womb. So she will need to have surgery as soon as possible to remove a fairly large portion of her skull in order for it to grow and fuse properly.
As you can imagine this news came as a bit of a shock. But, we are all coping pretty well right now. The good thing is the cranial and neuro surgeons working with her are amazing and we are 30 min. from one of the best Children's Hospitals in the nation. We have great confidence in their abilities which gives us alot of peace. The Doctors seem very optimistic. Also within the past year and a half they have found a less invasive surgical procedure with very high success rates.
After surgery she will have to wear a helmet 24 hrs a day for the next year. We saw one of them and they make them look so cute. I'm sure she'll look adorable. So today was a very long day for us all. Elliana is the sweetest baby I ever saw. She smiled and cooed all day through all the poking and prodding. Even strapped down during the CAT scan she wasn't scared and never cried. I have to admit it almost broke heart to pieces to see her lying there, my sweet little baby. She has always been so alert and bright eyed. Oh how we love her sweet little spirit.
These next few weeks will be filled with tests and frequent visits to the hospital. Overall we know there are tough months ahead but we are feeling very optimistic. We are so grateful to have such loving and supportive family and friends. Thank you all and we'll keep you up-dated as we find out more.
Doesn't she look like a little flower child. Peace, love and all that.
Ellie's big beautiful eyes
At the Park by our new house











